Alexa went back to school today for a few hours in the morning. She and I both were happy to get back to our routines. I was able to get my groceries for Thanksgiving, hit T*arget and work out. Her friends were really glad to see her and she was happy to be back. : ) !!!! Excuse the horrible quality of this photo. We were running late and I took some really fast crummy photos outside before we left.
Sunday, November 22, 2009
We are over the hump! Finally...whew what a long week. Yesterday was day 9 after surgery and Alexa was mostly back to her old self. Her energy was up and her throat only seems to hurt sporadically. She is still having a few troubles eating but that is subsiding too each day. She lost a bit of weight which was something we did not want to happen but she certainly was not eating much all week so I think it was to be expected. Now, we need to fatten the girl up!
She is sleeping like a dream except when she wakes up 3 times in the night wanting the mama! When she was a baby she would wake up every night at 10:00, 12:00 and 3:00 and cry for me. Well, can you guess what is going on now...yep same schedule. She wakes up crying because her throat hurts and then I go in and comfort her and then back to bed she goes. Needless to say, I have not had much sleep in the past 9 days. I think once she is back to feeling 100% she will sleep even better. It is still so odd because she is so quiet when she is sleeping. This was our goal and it is really amazing.
So, now that she is on the mend it is time to focus on Thanksgiving...yikes only 4 days away! We certainly have a lot to be thankful for this year. : )
Posted by Sue at 7:10 AM
Friday, November 13, 2009
We are doing well! Alexa was an absolute champ today and is home doing very well.
Our morning started at 6:15 check-in at the surgery center. Alexa was very relaxed and in good spirits. I really think the tour on Wednesday helped her so she knew what to expect. After some paperwork and waiting we were called back to get ready. Alexa was given a "relaxer" medicine which made her all loopy so she wouldn't have a tough time leaving us and getting started. This was a difficult time for me because I did not like seeing her all spacey and out of it. I was starting to get anxious so I was sort of glad when they told us it was time to go. I wanted to get the show on the road! All the anxiety leading up to it was killing me! We gave her kisses and told her we loved her than went back to the waiting room ( well, I went outside for a moment to "gather" myself) and then it was only like a 30 minute wait until her surgeon came out to tell us she was finished and in recovery. He also said her tonsil were "HUGE".
We were allowed to go back into recovery after a few moments ( this photo above is from there). This was heart wrenching for a bit as she was just waking up and crying. She was telling me "her throat hurt" and I kept saying "I know honey, just rest your throat and don't talk." She finally fell back asleep and stayed comfortable the rest of the hour. Here is the amazing part for me. After she fell asleep, I realized, "Oh my goodness, she is quiet...no snoring or difficulty breathing!" I almost started crying! It was amazing to me after so many years to see her finally resting peacefully. When she napped at home later, I kept going in to check on her because I could not hear her breathing! Very odd for me.
We are so thankful for all the wonderful nurses and doctors today and the excellent care she received and the compassion for her and us too. We are also thankful for all your well wishes and prayers. It really means a lot.
Alexa is feeling much better than we expected. She was eating Jello and scrambled eggs only a few hours after we were home. She is keeping busy watching movies and sleeping. She is on pain meds and an antibiotic. She is talking and moving around. Here is another really strange thing. Her voice is totally different!! Kinda freaking me out. We're not sure yet if it is from her throat being sore of this is what is really should sound like without the "frog" in her throat. Time will tell.
So, we are so glad that we pusued this and got it done. For all the worry leading up to it and the anxiety, it is nothing compared to the peace of mind that she will feel better now without them.
She is our little trooper..she never ceases to amaze us what she can handle!! We love her so!
Posted by Sue at 5:31 PM
Friday, November 6, 2009
Alexa is having surgery next Friday. She is having her tonsils and adenoids removed as well as having her nose cauterized. I found a fabulous ENT who finally sees what we see....a otherwise healthy vibrant 4 year old with huge tonsils that are affecting her life in negative ways. He said that he would be shocked if she did not currently have sleep apnea, considering the size of her tonsils. They are also affecting her speech. She sounds like she has a frog in her throat and quite frankly I'm sure she feels like she does! He was appalled as I was that for over two years, 4 different doctors have told me that this was no big deal. I have stood over her bed almost every night listening to her fitfully sleeping, waking every few minutes to get more oxygen in. I have gone to bed most nights wondering if she will continue to breath through the night. That might sound mellodramatic to some but as a mother, my instincts told me that this was not right and that I should push to pursue a solution.
So now we have finally scheduled the surgery and I am terrified!! I have not really let myself "go there" with my worry but I'm scared. I'm scared of her being under anethesia, being on an antibiotic for the first time in her life and having a reaction, and having post-surgery bleeding ( which is rare but does happpen). A week ago Alexa had a horrendous nosebleed in the night that scared the crap out of me and the chief. We both thought that we were not going to get this one to stop. It was like a faucet just running, down her throat, in her mouth...just horrible. The ENT said that she has huge blood vessels and that is why she keeps getting bloody noses ( for years). She has had her nose cauterized twice and he will only be able to do one nostril during surgery but we are hoping that will eliminate the episodes for the winter at the very least.
So,on Wedensday we are going for a pre-surgery tour which will makes us and Alexa more comfortable for what will happen on Friday morning. I would welcome any feedback from anyone who has already gone through this. I have done lots of research and am prepared for a pretty rough few weeks of healing.
I am also asking for any prayers next week for our sweet little girl. I have always believed in the power of prayer and our family would deeply appreciate your help in that respect.
I will try and post an update after the surgery after we are home and settled. : )
Posted by Sue at 10:49 AM
Sunday, November 1, 2009
The festivities started on Thursday with some pumpkin carving. My mom and dad came over to help out and join in the fun. After we did our pumpkins we roasted marshmallows in our outdoor fireplace ( it was the perfect rare cold night in AZ). Alexa loves using the stick she whittled to roast her own marshmallows.
The next morning it was off to school for the Harvest party and parade. Alexa kindly asked if I would dress up as Sleeping Beauty's queen mother so I had to oblige. For two days before she would read her princess books and inform me of my "royal duties" to be polite ( as if I wouldn't!) and mind my manners. She was so cute when I was helping her get her "jewels" on. I let her wear a pair of my drop earrings and pearls and she was loving that!
The Queen and her princess. Yee gads, I could not wait to get that thing off once the day was over. I volunteered at her school for the party and was in charge of leading 3 groups of trick or treaters through the complex where the school is located....yikes, in heels!! A Queen just does not wear gym shoes under her gown...imagine!
She really loved this dress.
The following morning at Ballet class they were allowed to dress in costume. She is wearing a different princess dress because her other one was just filthy from dragging on the ground. Here she is with her friend Sydney
This is not the best photo because it was taken through glass but I like it anyway. She was doing her solo with the scarves. She loves that part. : )
Halloween night at our annual Fire Dept. neighborhood party. Here she is with the Chief. I love how she has her arm around him...so precious. We did a trunk or treat and she got lots of candy which she was so sweet to share with everyone in her family.
It was a fun filled weekend of activities and fun memories!!
Posted by Sue at 3:28 PM
A couple of weeks ago we went to a Fancy Nancy party at our local library. This lady was a hoot and was so entertaining. All the girls dressed up in their fanciest outfits and listened to stories, ate little cupcakes and enjoyed being "fancy".
As you can see, Alexa loves getting dressed up in all her jewels and fancy accessories.
Posted by Sue at 7:14 AM